Normal

It’s easy to forget our angel has a serious disease. She plays, laughs, and looks so normal and healthy. Sure, we supplement each meal with enzymes, we administer Prilosec twice a day, and we perform Chest Physical Therapy (CPT) in the morning and before she goes to bed. Oh and she also takes fat soluble vitamins daily. But it’s all just become routine for our family…Our “Normal.” We feel blessed that things aren’t worse than what they are. So many families have much more difficult challenges than we do. However, the past few days have been a wakeup call for us. If you read the previous post you know that Adalyn came down with her first fever Thursday night. Since then we’ve had a roller coaster of events take place that have rocked our world. A chest x-ray found that Adalyn has a mass in her lung that could be pneumonia or mucus. She’s been put on an antibiotic, more strenuous CPT, and a nebulizer therapy. Seeing Addy with her nebulizer mask on makes this disease feel so much more real. In my mind, the mask (and vest) have always been the face of Cystic Fibrosis. Most websites, pictures, and marketing materials show these devices when referring to CF. However, if you look at the past 25 weeks worth of posts on this site, you won’t see any of that. But, we’re going to do whatever it takes to keep Adalyn healthy and happy. It was with great anxiety that we followed doctors orders and administered the Albuterol via the nebulizer. But before we did, we called our wonderful mentor family, Allan and Tabitha, to calm our nerves and get some advice (thanks guys! you’re the best!). Adalyn surprised us though. We were expecting a battle. But, she took the new therapy like a champ (she even fell asleep!). Almost as if to show us that this is nothing more than adding something else to our “Normal.”